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Gene therapy that delivered an antisickling variant of hemoglobin in an autologous hematopoietic stem cell (HSC) transplant had ameliorated all the symptoms of severe sickle cell disease (SCD) in a 15-year-old boy 2 years out from the procedure. The Sickle Cell Condition Advocates (SICCA), a registered Non-Governmental Organization (NGO) which has been in operation since September 2007 is involved in many activities which aims at educating, counseling, raising awareness on SCD and reducing it to the barest minimum in the long term.
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The federation is a union because it is indestructible and helps to maintain the unity of the country.